The “AHC Vereniging Nederland” is the Dutch AHC Patients Association, a non-profit organization offering support for affected children and their families.
 
AHC is short for Alternating Hemiplegia of Childhood. Plegia refers to forms of paralysis of the body and or limbs, Hemi adds the scale of half the entire body to it and Alternating indicates that the forms of paralysis may change from one side of the body to the other. Childhood means that the disease is most often diagnosed during childhood, but it may well extend to adult patients.
 
Our main goals are to:

• Provide information about AHC in the Netherlands;
• Provide support to the children and their families especially in the early moments;
• Look after interests of people with AHC and their families;
• Promote the study into the cause of AHC;
• Promote the study into an effective medical treatment for AHC.

How do we want to reach this?

• By providing and distributing information material and brochures and by maintaining a website;
• By contacting people and agencies that AHC patients may depend on in the future;
• By maintaining contact with foreign AHC Patient Associations;
• By contacting medical scientists who could contribute in finding the root-cause of AHC and a medical treatment for it.

 
Membership and donations:
The association has members and donators. Membership is open for people with AHC and their direct family members. The membership costs €10 per year. Members have access to and voting right on the general member meeting.
 
Everyone can become a donator of the association for a minimum of €5 per year. Donators have access to the general member meeting. They have no voting rights but are allowed to speak and address the meeting officially.